Advocacy, Access, and Movement for the Silenced.
Nearly daily, I research the internet for articles that can educate me on new developments into LiS. Being the rare condition that it is, so too is the funding, and thus the interest in discovering a fix for this life-altering curse is almost nill. There are the many articles that give the same information on…
Nearly two years into a new lifestyle I did not choose, I still do not have a pain medication that is effective for me. Though they have tried many, sadly none have worked. I have sometimes wondered if the blockage in my brainstem is responsible for my quadriplegia, and could also be keeping the pain-killing…
We too often settle on a lesser version of ourselves. When we are in our formative years we want to be an astronaut, doctor, or in my case, it was an architect. Somewhere along the line, I let myself get distracted, but I always thought that there was plenty of time. And while we may…
Today was Labor Day, 2023. A day that is for many the end of summer, though officially that will not occur for a few weeks. I say good riddance. It is my least favorite of the seasons, and this summer has been particularly brutal. Soon we will hearken back the season I enjoy the most… …
Abraham Lincoln once said, “The best way to predict the future is to create it.” It’s really just a statement of the obvious. The reality is the future is a merger of our past and present. The inevitable outcome of the decisions we’ve made or are currently making. We create the person we ultimately become….
I have been on a self-imposed hiatus of sorts. Some inner conflict that I needed to work through. In addition, I decided to reassess the direction of my BLOG posts. I started making my writings about and worrying about my popularity. How many views I was, or I should say, wasn’t getting, that’s what consumed…
I have no breath control. My breathing is shallow and fairly rapid. It is automatic. I cannot hold my breath by choice. However, every 12 minutes, my body takes a deep breath. The time varies, sometimes it occurs as soon as 5 minutes, and it has been as long as 19 minutes. It’s funny how I…
I need to start writing more about my experiences during my long 76-day stay in the hospital and the short four-day stint I spent in that nursing home. While those times were filled with some pretty unpleasant memories, I believe I’m far enough removed now that they won’t trigger the same anxieties I developed back…
This post is dedicated to my youngest Son and middle child Scott. Today is Scott’s thirtieth birthday. Some 11 thousand other people were born on that day in the U.S., and our world has added approximately 3 billion people since he was born. Of those 3 billion more or less, I’d say I got the…
“Get off my lawn!” Saying it brings back images of the movie Gran Torino. Clint Eastwood staring down the barrel of his shotgun trained on a group of teenagers, whose fight happened to spill onto his front lawn. Their being there was unintended, and although the boys were up to no good, what Clint Eastwood was…