Advocacy, Access, and Movement for the Silenced.
My eyes slowly open from a deep, peaceful slumber. I think for a moment but I am unfortunately unable to recall any of my dreams from the night before. Too bad. For when I can they have always been pleasant ones. To my right, atop an antique buffet, there sits a small lamp that shines…
I didn’t think yesterday would be so hard but it was. Looking back on the past two years makes me realize how much I’ve lost. Don’t get me wrong, I’m proud to have created the BLOG. I don’t think I ever would have done it were it not for my LiS, much less stuck with it….
Two years ago today I suffered the stroke that is responsible for the state I find myself in today. Best described as up a creek without a paddle. Not at all an anniversary to be celebrated, but like Pearl Harbor, it forever will be a day I will commemorate. Not a day to celebrate, but…
Nearly daily, I research the internet for articles that can educate me on new developments into LiS. Being the rare condition that it is, so too is the funding, and thus the interest in discovering a fix for this life-altering curse is almost nill. There are the many articles that give the same information on…
Nearly two years into a new lifestyle I did not choose, I still do not have a pain medication that is effective for me. Though they have tried many, sadly none have worked. I have sometimes wondered if the blockage in my brainstem is responsible for my quadriplegia, and could also be keeping the pain-killing…
We too often settle on a lesser version of ourselves. When we are in our formative years we want to be an astronaut, doctor, or in my case, it was an architect. Somewhere along the line, I let myself get distracted, but I always thought that there was plenty of time. And while we may…
Today was Labor Day, 2023. A day that is for many the end of summer, though officially that will not occur for a few weeks. I say good riddance. It is my least favorite of the seasons, and this summer has been particularly brutal. Soon we will hearken back the season I enjoy the most… …
